The Patient Experience Library

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What Your Patient is Thinking - Navigating surgery with ADHD and autism

BMJ

8th October 2024

Kirsty Brown shares her experience of undergoing surgery as a person with attention deficit/hyperactivity disorder (ADHD), and explains some of the ways that health professionals could help others like her

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The opioid industry's use of scientific evidence to advance claims about prescription opioid safety and effectiveness

Oxford University Press - Health Affairs Scholar - NON-UK!

2024

t is widely recognized that pharmaceutical marketing contributed to the ongoing US opioid epidemic, but less is understood about how the opioid industry used scientific evidence to generate product demand, shape opioid regulation, and change clinician behavior. In this qualitative study, we characterize select scientific articles used by industry to support safety and effectiveness claims and use a novel database, the Opioid Industry Documents Archive, to determine notable elements of industry and non - industry documents citing the scientific articles to advance each claim. We found that 15 scientific articles were collectively mentioned in 3666 documents supporting 5 common, inaccurate claims: opioids are effective for treatment of chronic, non - cancer pain; opioids are rarely addictive; pseudo - addiction is due to inadequate pain management; no opioid dose is too high; and screening tools can identify those at risk of developing addiction. The articles contributed to the eventual normalization of these claims by symbolically associating the claims with scientific evidence, building credibility, expanding and diversifying audiences and the parties asserting the claims, and obfuscating conflicts of interest. These findings have implications for regulators of industry products and corporate activity and can inform efforts to prevent similar public health crises. [less]

t is widely recognized that pharmaceutical marketing contributed to the ongoing US opioid epidemic, but less is understood about how the opioid industry used scientific evidence to generate product demand, shape opioid regulation, and change clinician behavior. In this qualitative... [more]

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'What is this plan for? ' The purpose and content of child in need plans

Children's Commissioner

October 2024

Despite children on child in need plans making up the largest group of children supported by children's social care in England, the support they receive is poorly monitored and the progress made by families on child in need plans is hard to track. Earlier this year, driven by the lack of available data and understanding on who these children are, the Children's Commissioner's office published ' Children on child in need plans'. This report highlighted substantial variation in the use of these plans among different groups of children and across local authorities in England. To enhance our understanding of section 17 as an intervention, this second report draws on a sample of child in need plans collected under the Children's Commissioner's statutory powers, to examine the contents of child in need plans, look at whether the plans achieve the outcomes they set out to, and to assess how families' progress is measured. [less]

Despite children on child in need plans making up the largest group of children supported by children's social care in England, the support they receive is poorly monitored and the progress made by families on child in need plans is... [more]

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Beyond the breaking point, patient survey highlights NHS challenges

The Patients Association

July 2024

The Patients Association's survey into patients' experiences of healthcare, carried out just before July's general election, provides compelling evidence supporting Secretary of State for Health and Social Care, Wes Streeting's assessment that the NHS is broken. Our findings reveal a healthcare system that is failing to meet patients' needs. The stark reality is clear: patients deserve far better than they currently get. [less]

The Patients Association's survey into patients' experiences of healthcare, carried out just before July's general election, provides compelling evidence supporting Secretary of State for Health and Social Care, Wes Streeting's assessment that the NHS is broken. Our findings reveal a... [more]

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State of Caring in Wales 2024 - The impact of caring on: finances

Carers Wales

October 2024

Carers Wales, as part of Carers UK, carried out an online survey with unpaid carers between June and August 2024

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Understanding the management and monitoring of waiting lists in adult social care

Local Government Association

4th November 2024

There is increasing desire to develop shared metrics relating to care waiting lists and waiting times for adult social care assessment, support, and reviews. However, different approaches make comparison or national overview and understanding difficult to achieve. We initiated a project focused on co - ordinating stakeholder engagement to inform a shared understanding of adult social care waiting times and waiting lists. These are the findings and next steps from that engagement. [less]

There is increasing desire to develop shared metrics relating to care waiting lists and waiting times for adult social care assessment, support, and reviews. However, different approaches make comparison or national overview and understanding difficult to achieve. We initiated a... [more]

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South Asian Muslim individuals' lived experiences of Type 2 Diabetes healthcare - 'I just want someone to actually break it down for me'

Routledge - Psychology & Health - NON-UK!

2024

Type 2 Diabetes is highly prevalent across Aotearoa New Zealand, and South Asian people have a disproportionately high burden of disease. This research aimed to improve under - standing of South Asian Muslim people's experiences navigating New Zealand's diabetes healthcare to promote cultural responsive - ness and equitable outcomes

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Palliative care is an overlooked global health priority

BMJ

1st November 2024

mproving access and tackling inequities in palliative care globally would help to reduce preventable suffering, write Anna Peeler, Oladayo Afolabi, and Richard Harding

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Providers deliver, shifting care upstream

NHS Providers

October 2024

This report shows how, in the face of a very challenging environment, trusts are innovating and adapting to deliver the three key shifts called for by the government (hospital to community, analogue to digital, and treatment to prevention)

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Unlocking prevention in integrated care systems

NHS Confederation

October 2024

This report establishes: what prevention means to people working within integrated care systems (ICSs); the barriers, enablers and opportunities for prevention within systems; best practice on overcoming those barriers; and the support needed at the national level to progress the prevention agenda through ICSs

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