Patient Experience Library

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The Patient Experience Library

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Added to library: Sep 5th 2024

Document title:

Deep Dive Report - Patient Experiences of the 999 Ambulance Service

Source:

Healthwatch Staffordshire

Date:

July 2024

Details:

The ambulance service is the first port of call for members of the public when medical emergencies arise. They expect a 999 call to bring a timely response. They see on TV the great work that paramedics do day in day out but are increasingly concerned about reports in the media of lengthening ambulance delays with crews queuing outside Hospital Accident and Emergency Departments for long periods. This concern has been picked up by Staffordshire County Council Health and Care Overview and Scrutiny Committee who met with senior managers from West Midlands Ambulance Service to discuss their concerns on 13 November 2023. The Staffordshire and Stoke on Trent Integrated Care Board made the reduction of Category 2, and 3 ambulance calls their key performance metric in their 2023/24 Operational Plan. It reflects their ambition to provide better and more compassionate care in the community and avoid hospital admissions where possible for elderly and frail people, especially at the end of life. We received feedback from 359 members of the public on their experiences of calling the 999 service during January and February 2024 with the top three reasons being falls, shortness of breath and chest pain. T

Deep Dive Report - Patient Experiences of the 999 Ambulance Service

Healthwatch Staffordshire

July 2024

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The Patient Experience Library

Url:

https://pexlib.net/?244881

Added to library: Sep 5th 2024

Document title:

Diabetes Awareness Event Report

Source:

Healthwatch Central Bedfordshire

Date:

15th August 2024

Details:

Working in partnership with Health Innovation East (HIE) and the National Institute for Health Research (NIHR), Healthwatch Central Bedfordshire (HWCB) was proud to host a Diabetes Awareness event on 15th August 2024 at the Rufus Centre in Flitwick, Bedfordshire. The event was an opportunity for local people to get involved in Diabetes and health research and to learn more about the care and support services available, to help manage the condition, including preventative measures, and to speak directly to Diabetes experts. The event included nine exhibitors, five speakers and a panel of five professionals representing their organisation. Of the 96 people who registered to attend the event, 69 were present on the day, including six HWCB staff.

Diabetes Awareness Event Report

Healthwatch Central Bedfordshire

15th August 2024

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Quarterly Performance Report - Year 1 Quarter 3

Healthwatch Warwickshire

May - July 2024

Healthwatch Warwickshire, Quarterly Performance Report, Year 1 Quarter 3, May - July 2024

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The Patient Experience Library

Url:

https://pexlib.net/?244877

Added to library: Sep 5th 2024

Document title:

People's experiences of eye care services in Oxfordshire

Source:

Healthwatch Oxfordshire

Date:

September 2024

Details:

This report summarises the results of a Healthwatch Oxfordshire study of primary and secondary eye care services in Oxfordshire. It focused on people's experiences of appointments, information and communication, referral to a specialist service, quality of care, and support to manage an eye condition. We ran an online survey asking people in Oxfordshire to share their thoughts and experiences of using eye care services in the previous two years. We analysed the results of 141 survey questionnaires from people with different demographic characteristics across Oxfordshire's five districts

People's experiences of eye care services in Oxfordshire

Healthwatch Oxfordshire

September 2024

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The Patient Experience Library

Url:

https://pexlib.net/?244875

Added to library: Sep 5th 2024

Document title:

What we heard

Source:

Healthwatch Rotherham

Date:

August 2024

Details:

In August, we spoke to 77 people regarding their experiences with health and social care services in Rotherham. This information was gathered from in-person engagement, events and telephone/email enquiries. We spoke to people from a variety of backgrounds and ages. You can view our most spoken about topics and services below (including Rotherham Hospital, GP and pharmacy services).

What we heard

Healthwatch Rotherham

August 2024

In August, we spoke to 77 people regarding their experiences with health and social care services in Rotherham. This information was gathered from in - person engagement, events and telephone/email enquiries. We spoke to people from a variety of backgrounds and ages. You can view our most spoken about topics and services below (including Rotherham Hospital, GP and pharmacy services)

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Annual Report 2023/24

Healthwatch Bristol

Healthwatch Bristol, Annual Report 2023/24

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The Patient Experience Library

Url:

https://pexlib.net/?244873

Added to library: Sep 4th 2024

Document title:

Disabled people negotiate gender, sexual identity and self-directed social care support in England, how does choice and control operate?

Source:

Critical and Radical Social Work

Date:

2nd September 2024

Details:

Putting disabled people in charge of their own support was a central component of the UK personalisation agenda. Austerity, staff recruitment difficulties and local authority retrenchment have meant that the experience for disabled people has not always lived up to the rhetorical promise. In this context, disabled people with marginalised sexual and/or gender identities face difficult choices in everyday interactions of support that trouble the idea that control routinely sits with them. In this article, we draw on two research studies with disabled people who use self-directed support in which they discuss navigating gender and sexual identity. In both studies, there are opportunities for disabled people to draw on support that is empowering, but we also hear about 'bad bargains' that they are sometimes forced to make. We argue that the hard-won goals of choice and control are being degraded and confronting LGBTQI+ and non-binary disabled people with sometimes impossible dilemmas.

Disabled people negotiate gender, sexual identity and self - directed social care support in England, how does choice and control operate?

Critical and Radical Social Work

2nd September 2024

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Q1 Patient Experience Report

Healthwatch Ealing

April - June 2024

This report functions as a standardised general overview of what Ealing residents have told us within the last three months

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The Patient Experience Library

Url:

https://pexlib.net/?244871

Added to library: Sep 4th 2024

Document title:

Benefits, barriers and recommendations for youth engagement in health research, combining evidence-based and youth perspectives

Source:

BMC - Research Involvement and Engagement

Date:

2024

Details:

Engaging and partnering with youth in research related to healthcare is important, but often not done well. As researchers, we recognize that youth perspectives are needed to make sure we are asking the right questions, using appropriate research methods, and interpreting the results correctly. We searched the literature to identify challenges researchers have faced engaging youth in health research, as well as strategies to partner with youth in a meaningful way. We worked closely with 11 youth from across Canada with experience in healthcare, who formed a Youth Advi- sory Council. The youth advisors reviewed the literature we found and discussed how it fit with their own experiences and perspectives through group meetings with the research team. Youth advisors divided into four groups to co- author parts of this paper, including identifying the importance, benefits, and challenges of engaging in research and providing reflections on their positive and negative previous experiences as youth advisors. This paper provides an overview of recommendations for researchers to engage with youth in a meaningful way, including how they communicate and meet with youth, recognize their contributions, and implement feedback to improve the experi- ences of youth partne

Benefits, barriers and recommendations for youth engagement in health research, combining evidence - based and youth perspectives

BMC - Research Involvement and Engagement - NON-UK!

2024

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The Patient Experience Library

Url:

https://pexlib.net/?244870

Added to library: Sep 4th 2024

Document title:

'Should we even have questions?' From survey to exhibition - co-producing research about 'mental health' with carers and adults with learning disabilities

Source:

International Journal of Care and Caring

Date:

2024

Details:

Carers' mental health is often the focus of policy and research in Global North contexts. Research exploring carers' views often uses survey methods to collect information about their experiences and views of services and support. However, the experiences of adult carers of adults with learning disabilities have often been marginalised within these domains. Here, we report on how, working together with family carers, we disrupted survey methods and generated new insights into what matters to family carers when sharing their experiences of care, mental health, services and support, as well as the crucial role of co-production in this research.

'Should we even have questions? ' From survey to exhibition - co - producing research about 'mental health' with carers and adults with learning disabilities

International Journal of Care and Caring

2024

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	* Quality of care that people experience
	* Quality improvement
	* Public engagement
	* Wider policy and practice

Featured Reports
	RAND Corporation, Co-Design of Services for Health and Reentry (CO-SHARE), Research Report, 2019
	Healthwatch Bristol, Impact Report, The Natural Health Service, Bristol Community Pot Micro Projects, December 2018
	The Health Foundation, A place to grow, Exploring the future health of young people in five sites across the UK, December 2018
	Patient Experience Library, Patient Experience and patient/public involvement in health and care services, Quarterly update from The Patient Experience Library, Winter 2019
	Isle of Wight NHS Trust, ANNUAL PATIENT EXPERIENCE REPORT 2017 / 2018, 30th May 2018
	The Queen's Nursing Institute, Nursing care for people experiencing homelessness, a survey of the QNI Homeless Health Network, 2018
	Lancashire Teaching Hospitals NHS Trust, Patient Experience and Involvement Strategy, 2018 - 2021
	Healthwatch Gloucestershire, End of life report, Evaluation of non-clinical support, November 2018
	Healthcare Safety Investigation Branch, Investigation into the provision of mental health care to patients presenting at the emergency department, November 2018
	Healthwatch North Tyneside, Supporting People in Crisis, People's experiences of using services in North Tyneside when experiencing a mental health crisis, November 2018
	Healthwatch Cornwall, End of Life Care in Cornwall, A report on public understanding and experience, November 2018
	Royal College of Physicians, Outpatients, the future - adding value through sustainability, Case Studies, 2018
	Royal College of Physicians, Outpatients, the future - adding value through sustainability, 2018
	NHS England, Seeking Feedback in Distressing or Highly Emotional Situations, Bite-size guide to Patient Insight, October 2018
	Healthwatch York - York LGBT Forum, Lesbian, Gay, Bisexual and Trans+ (LGBT+) experiences of Health and Social Care services in York, September 2018
	Healthwatch Enfield, Informing the future direction of North Middlesex University Hospital NHS Trust, 2018
	Healthwatch Norfolk, Becoming a dementia friendly GP surgery, 5 simple steps, July 2018
	Age UK, The failing safety net, September 2018
	Healthwatch Hampshire, Enter and View Report, Willow House Residential Care Home, 2 Reading Rd, Farnborough GU14 6NA, 2nd May 2018
	Healthwatch Oxfordshire, Treatment only when needed, Dental Services for Care Home Residents, August 2018
	Healthwatch Wirral - Interchange, Health Without A Home, 2017/2018
	NHS Digital, Patient-Led Assessments of the Care Environment (PLACE), 21st March 2018 to 4th June 2018
	Healthcare Inspectorate Wales, Patient discharge from hospital to general practice, thematic report 2017-2018, published 2018
	Healthwatch Greenwich, Preliminary Review of Greenwich Child and Adolescent Mental Health Services, Identifying areas for further investigation, June 2018
	All Party Pharmacy Group, In Good Health, A Report following the All Party Pharmacy Group's 2018 Inquiry into Long Term Conditions, 11th July 2018
	Healthwatch Hampshire, Enter and View Report, Heatherside Care Home, Scures Hill, Basingstoke, Nately Scures RG27 9JR, 18th April 2018
	General Medical Council (GMC), National training surveys 2018, Initial findings report, 6th July 2018
	Carers UK, State of Caring 2018, July 2018
	MS Society - Nuffield Trust, Improving care for people with MS, the potential of data and technology, July 2018
	Healthwatch Hampshire, Enter and View Report, Bickerley Green Care Home, Kingsbury Lane, Ringwood BH24 1EL, 14th March 2018
	Health Expectations, Pre-adolescent children's experiences of receiving diabetes-related support from friends and peers, A qualitative study, Original Research Paper, 13th May 2018
	Patient and Client Council (Northern Ireland), The experience of living in a nursing home, Literature review and summary of key issues raised with the Patient and Client Council Complaints Service, June 2018
	Department of Health and Social Care, Carers Action Plan 2018 - 2020, Supporting carers today, June 2018
	Alex C Cheng, 1Vanderbilt University, Nashville, TN, Determining Burden of Commuting for Treatment Using Online Mapping Services - A Study of Breast Cancer Patients, 2017
	Healthwatch Derbyshire, Dementia Report Experiences of Health and Social Care services in Derbyshire from the perspectives of people living with dementia, their carers and family members, March 2018
	Healthwatch Kirklees, Asylum Seekers, Refugees and People from Emerging Communities, Health issues, inequalities and barriers in Kirklees, November 2017
	Healthwatch Hampshire, Enter and View Report, Hawthorne Court Nursing Home, Sarisbury Green, Southampton SO31 7LX, 21st February 2018
	Healthwatch Hampshire, Enter and View Report, Tegfield House Care Home, Chilbolton Avenue, Winchester SO22 5HD, 8th March 2018
	Healthwatch Surrey, 'What I want...within reason', An exploration of mealtimes in 20 care homes for older people., May 2018
	Healthwatch Lancashire, Supporting access to services for Military Veterans, May 2018
	NHS England, Fifteen Steps for Maternity, Quality from the Perspective of People who use Maternity Services, 2018
	Healthwatch Stockton-on-Tees, Report on patient experience of dental services in Stockton-on-Tees, February 2018
	Healthwatch Cheshire West - Healthwatch Cheshire East, Awareness of 'Self Care' in Cheshire, March 2018
	Healthwatch Cheshire West - Healthwatch Cheshire East, Access to Health and Care for the Boating Community in Cheshire, March 2018
	Healthwatch Shropshire, Enter and View Report, Albrighton Medical Practice, Shaw Lane Albrighton, Shropshire WV7 3DT, 19th April 2018
	Healthwatch Oldham, Type 2 Diabetes Forums Analysis Report, May 2018
	Healthwatch Richmond upon Thames, Richmond Early Intervention Service, Project Report, January 2018
	Healthwatch Lewisham, Food for Thought Lewisham, Children and Young People's Healthy Eating - Lewisham, 2017/2018
	Healthwatch Barnet, Home Care in Barnet, A report on the experiences of local home carers and home care agencies, April 2018
	Healthwatch Hackney and City - Hackney Mind, Single homelessness and mental health in Hackney - An insight into the experiences of single homeless people with mental health needs, April 2018
	Healthwatch Shropshire - Keele University, An analysis of the awareness and attitudes towards the complaints procedures in local general practices in Shrewsbury, from the perception of patients and staff members, March 2018
	Healthwatch Enfield, Accident & Emergency, a place of choice for addressing everyday healthcare needs, 2018
	Care Opinion, The Impact of Non-Clinical Staff Members on Patient Experience, An analysis of stories from Care Opinion, April 2018
	Healthwatch Trafford, Getting to the root of the problem, Experiences and availability of NHS Dentists in Trafford August - September 2017, Published March 2018
	Healthwatch Enfield, Accident & Emergency - a 'one stop shop' for everyday healthcare needs, North Middlesex University Hospital NHS Trust, 2018
	Care Quality Commission, Driving improvement, Driving improvement Case studies from seven mental health trusts, March 2018
	Care Quality Commission, Mental health rehabilitation inpatient services, Ward types, bed numbers and use by clinical commissioning groups and NHS trusts, March 2018
	Care Quality Commission, Monitoring the Mental Health Act in 2016/17, FULL REPORT, 1st March 2018
	Healthwatch York, Filled to Capacity, NHS Dentistry in York, March 2018
	Patient and Client Council, Our lived experience of waiting for healthcare, People in Northern Ireland share their story, March 2018
	Healthwatch West Berkshire, Homeless And Rough Sleepers Report, Access to and the Experience of Health and Social Care Services for Rough Sleepers in West Berkshire, 2018
	King's College London, Mapping of specialist primary health care services in England for people who are homeless, FULL REPORT, February 2018
	Department of Health and Social Care, Government response to the Lords Select Committee report on long-term sustainability of the NHS and adult social care, February 2018
	The Commonwealth Fund, Intensive outpatient care program, a care model for the medically complex piloted by employers, September 2017
	Macmillan Cancer Care, The final injustice, variation in end of life care in England, December 2017
	Healthwatch Hampshire, Enter and View Report, Pax Hill Care Home, Pax Hill, Bentley, Farnham, Surrey GU10 5NG, 19th October 2017
	The King's Fund, The risks to care quality and staff wellbeing of an NHS system under pressure, 31st January 2018
	The Inquiry into Hyponatraemia-related Deaths, Report of the Inquiry into Hyponatraemia-related Deaths, January 2018
	Care Quality Commission, 2017 survey of women's experiences of maternity care, January 2018
	Canadian Partnership Against Cancer, Living with Cancer - FULL REPORT, A Report on the Patient Experience, January 2018
	The King's Fund, Reimagining community services, Making the most of our assets, January 2018
	Innovation Unit, Against the odds, successfully scaling innovation in the NHS, 2008
	House of Commons Health Select Committee, The nursing workforce, 26th January 2018
	Patient Experience Library, Patient Experience and patient/public involvement in health and care services, Winter 2018
	Care Quality Commission, NHS Patient Survey Programme, 2016 Children and young people's inpatient and day case survey, November 2017
	NHS England, Patient and public voice partners and chairs survey report, November 2016
	The King's Fund, A tale of two cities, Community perspectives and narratives on inequality, struggle, hope and change, 2017
	Nuffield Trust, A two-way street, What can CCGs teach us about accountability in STPs?, November 2017
	The King's Fund, Embedding a culture of quality improvement, November 2017
	Healthwatch Leicester, Evaluating Young People's Experiences Of Transitioning In Local Health Services in Leicester, 2017
	Healthwatch East Riding of Yorkshire, Silent Partners, Working Age Male Mental Health, October 2017
	British Red Cross, Prevention in action, How are prevention and integration being implemented?, September 2017
	National Audit Office, Care Quality Commission - regulating health and social care, Full Report, October 2017
	Healthwatch Staffordshire, Hospital Discharge Report, July 2017
	Care Quality Commission, The state of hospice services in England 2014 to 2017, Findings from CQC's initial programme of comprehensive inspections of hospice services, Published October 2017
	Patient Experience Library, Patient Experience, Quarterly update from The Patient Experience Library, Autumn 2017
	Education Policy Institute, Access and Waiting Times in Children and Young People's Mental Health Services, September 2017
	Care Quality Commission, The state of care in general practice 2014 to 2017, Findings from CQC's programme of comprehensive inspections of GP practices, September 2017
	The King's Fund - Nuffield Trust, Sustainability and transformation plans in London, An independent analysis of the October 2016 STPs - (completed in March 2017, Publishd September 2017
	Macmillan Cancer Support, From the frontline, workforce pressures in the NHS, September 2017
	Institute of Public Care (IPC), Reducing health inequalities, system, scale and sustainability, July 2017
	Insitute for Fiscal Studies, Divided by choice? Private providers, patient choice and hospital sorting in the English National Health Service, 9th August 2017
	The King's Fund, Developing accountable care systems, Lessons from Canterbury, New Zealand FULL REPORT, August 2017
	Nuffield Trust, Primary Care Home, Evaluating a new model of primary care, August 2017
	Healthwatch Greenwich, Greenwich GP Access Report 2017, Published August 2017
	Healthwatch Essex, The Health Care Experiences of Homeless People in Essex, 2017
	Healthwatch Hounslow, Survey of London Ambulance Services (LAS) - Hounslow, 2017
	Care Quality Commission, The state of care in mental health services 2014 to 2017, Published July 2017
	Nuffield Trust, Learning from Scotland's NHS, Research report, July 2017
	Care Quality Commission, The state of adult social care services 2014 to 2017, Findings from CQC's initial programme of comprehensive inspections in adult social care, 6th July 2017
	Healthwatch Hampshire, Care at Home, Domiciliary care services from the patient's point of view, 2017
	Healthwatch Norfolk, General Practice in Norfolk, Working relationships with patients and other services (Part one), July, 2016
	Healthwatch Lancashire - Healthwatch Blackburn with Darwen - Healthwatch Blackpool, Screening and Immunisation in the Traveller Community, Report summarising feedback from the Traveller community in Lancashire in relation to NHS screening and immunisation services, June 2017
	The Royal College of Obstetricians and Gynaecologists, Each Baby Counts, 2015 Summary Report, Published June 2017
	World Health Organization (WHO), How to strengthen patient centredness in caring for people with multimorbidity in Europe?, 2016
	Patient Experience Library, Insight Report - Young People and Diabetes, Compiled for: Centre for Health Research, Brighton University, February 2017
	Frontiers in Sociology, Beware Zombies and Unicorns, Toward Critical Patient and Public Involvement in Health Research in a Neoliberal Context, 2nd June 2017
	Healthwatch Wokingham Borough, Creating a WIN-ing idea, Hub for Homeless, May 2017
	Care Quality Commission, 2016 Adult Inpatient Survey, Statistical release, May 2017
	NHS Clinical Commissioners, Supporting strategic commissioning, collaborative working between CCGs and AHSNs, May 2017
	The King's Fund - Royal College of Psychiatrists, Mental health and new models of care, Lessons from the vanguards, May 2017
	Journal of Healthcare Leadership, The imperative of culture, a quantitative analysis of the impact of culture on workforce engagement, patient experience, physician engagement, value-based purchasing, and turnover, 6th April 2017
	Alzheimer's Society, Turning Up the Volume, unheard voices of people with dementia, May 2017
	Mental Health Foundation, Surviving or Thriving? The state of the UK's mental health, 2017
	The King's Fund, Leading across the health and care system, Lessons from experience, May 2017
	NHS England, Involving people in their own health and care, Statutory guidance for clinical commissioning groups and NHS England, 2017
	Care Quality Commission, Celebrating Good Care, Championing Outstanding Care, April 2017
	The Health Foundation, Briefing, Provision of community care, who, what, how much?, April 2017
	NHS Clinical Commissioners, Excellence in commissioning diabetes care, April 2017
	House of Commons Committee of Public Accounts, Access to general practice, progress review, 27th April 2017
	House of Commons Committee of Public Accounts, Integrating health and social care, 27th April 2017
	The King's Fund, Caring to change, How compassionate leadership can stimulate innovation in health care, May 2017
	The King's Fund, Organising care at the NHS front line, Who is responsible?, May 2017
	QualityWatch, Focus on, Emergency hospital care for children and young people, What has changed in the past 10 years? FULL REPORT, April 2017
	Care Quality Commission, Review of CQC's impact on quality and improvement in health and social care, April 2017
	The King's Fund, The future of HIV services in England, Shaping the response to changing needs, April 2017
	Healthwatch West Berkshire, Moving on - the Final Transition, What happens when - a carer can no longer care?, April 2017
	Healthwatch Essex, Negotiating the Care Maze - In Poetry, The process of decision-making when a family member or friend needs full-time residential care, October 2016
	The King's Fund - Centre for the Analysis of Social Media (CASM) at Demos, Online Support, Investigating the role of public online forums in mental health, April 2017
	Healthwatch Dorset, I'm Still Me, A look at how care homes in Dorset support people to live active, independent lives - FULL REPORT, March 2017
	The King's Fund, Public satisfaction with the NHS and social care in 2016, Results and trends from the British Social Attitudes survey, March 2017
	Patient Experience Library, Insight Report - Maternity Services, Compiled for: Bolton NHS Foundation Trust, February 2017
	Centre for Health Economics - The University of York, The Effect of Hospital Ownership on Quality of Care, Evidence from England, March 2017
	Local Government Information Unit (LGIU), Paying for it, The human cost of cut-price care, March 2017
	Healthwatch Slough, How Slough organisations can learn from feedback and complaints, March 2017
	Healthwatch Northamptonshire, Access to health and social care services for Northamptonshire's homeless and vulnerably housed population, The views of homeless people and professionals, March 2017
	The Neurological Alliance, Falling short, How has neurology patient experience changed since 2014?, March 2017
	Patient Experience Library, Insight Report - Perinatal Mental Health, Compiled for: East Surrey Clinical Commissioning Group, January 2017
	Healthwatch Leicestershire, The Lived Experience of Hospital Discharge, Survey of patients, carers and staff, February 2017
	Thomas Pocklington Trust, Older people's experiences of sight loss in care homes, FULL REPORT, February 2017
	NHS England, Five year forward view for mental health, one year on, February 2017
	Nuffield Trust, The London Quality Standards, A case study in changing clinical care - FULL REPORT, February 2017
	The Royal College of Midwives, State of Maternity Services Report 2016
	Healthwatch Kent, Discharge from Darent Valley Hospital, January 2017
	Healthwatch Hampshire, Out of focus, Certifications, registrations and signposting in pre and post diagnosis in Ophthalmology clinics within Hampshire: The role of Eye Clinic Liaison Officers, 2017
	Healthwatch Wiltshire, Listening to Children and Young People, Your Experience of Health and Social Care, December 2016
	Healthwatch East Riding of Yorkshire, Changing the Stigma, People's experience and perception of self-harm, February 2017
	Healthwatch Northamptonshire, Experiences of pregnancy, birth and onwards, The views of parents about services and support in Northamptonshire, January 2017
	Healthwatch Dorset - Healthwatch Hampshire - Healthwatch Isle of Wight - Healthwatch Southampton - Healthwatch Portsmouth (Wessex Voices) - NHS England Wessex., Positively engaging in NHS change, how best to involve people, Wessex Voices Event FULL Report, December 2016
	The Commonwealth Fund, Designing a High-Performing Health Care System for Patients with Complex Needs, Ten Recommendations for Policymakers, January 2017