Patient Experience Library

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Patients need access to their medical records - now

BMJ Opinion

11th July 2024

Giving patients real time access to their full electronic health records can help them to manage their health as effectively as possible

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Enter and View Report - Kingston Hospital Adult In - Patient Nutrition, Galsworthy Rd, Kingston upon Thames KT2 7QB

Healthwatch Richmond upon Thames

14th, 15th, 20th and 21st May 2024

Healthwatch Richmond upon Thames, Enter and View Report, Kingston Hospital Adult In - Patient Nutrition, Galsworthy Rd, Kingston upon Thames KT2 7QB, 14th, 15th, 20th and 21st May 2024

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Enter and View Report - Holt House, Headlands Drive, Hilton Lane, Prestwich, Manchester M25 9YF

Healthwatch Bury

12th July 2023

Healthwatch Bury, Enter and View Report, Holt House, Headlands Drive, Hilton Lane, Prestwich, Manchester M25 9YF, 12th July 2023

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The Patient Experience Library

Url:

https://pexlib.net/?244804

Added to library: Aug 30th 2024

Document title:

Review of NHS trust strategies for addressing health inequalities

Source:

NHS Providers

Date:

28th August 2024

Details:

NHS trusts play a crucial role in addressing health inequalities by focusing on providing equitable access to services and ensuring patients receive a consistent level of care. Our health inequalities guide for trust board members provides practical steps to ensure trust boards address health inequalities as part of their core business

Review of NHS trust strategies for addressing health inequalities

NHS Providers

28th August 2024

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The Patient Experience Library

Url:

https://pexlib.net/?244803

Added to library: Aug 30th 2024

Document title:

Somebody who understands the culture and their needs that can cater for them in their retirement time, a peer research study exploring the challenges faced by British Muslims with palliative care needs during the COVID-19 pandemic

Source:

BMJ Open

Date:

30th July 2024

Details:

Inequities in palliative and end-of- life care access exist, with evidence of lower uptake of these services among people from the British Muslim community. Little research exists exploring the experiences of British Muslims with palliative care needs and their families during the pandemic or before

BMJ Open

30th July 2024

Inequities in palliative and end - of - life care access exist, with evidence of lower uptake of these services among people from the British Muslim community. Little research exists exploring the experiences of British Muslims with palliative care needs and their families during the pandemic or before

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The Patient Experience Library

Url:

https://pexlib.net/?244802

Added to library: Aug 30th 2024

Document title:

Feeling or Funding? Critical Coproduction, Rationality, Emotionality, and Axiological Reflections

Source:

Sage - Qualitative Inquiry

Date:

2024

Details:

Coproduced research is at risk of becoming, and has perhaps already become, a 'mere buzzword', separated from its social and academic value. We argue this is connected to two things: the structuring of contemporary, particularly Global Northern, academia, and the traditional, dichotomous, and false intellectual separation of rationality from emotionality. Our modest attempt to tackle these problems come in the form of an extended critical discussion of coproduction and a social theoretical account of the emotions. These sections provide something of a 'ground clearing', based upon which, we illustrate our thesis with two personal accounts about how we came to value coproduction as a fundamentally moral and ethical way to approach our research. We conclude by appealing to colleagues to join us in attempting to undermine the empty and tokenistic use of coproduction by openly and honestly discussing the axiological and emotional foundations from which they work.

Feeling or Funding? Critical Coproduction, Rationality, Emotionality, and Axiological Reflections

Sage - Qualitative Inquiry

2024

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The Patient Experience Library

Url:

https://pexlib.net/?244801

Added to library: Aug 30th 2024

Document title:

Women's Health Project Report

Source:

Healthwatch Bury

Date:

May 2024

Details:

The department of health and social care developed a Women's Health Strategy in August 2022 highlighting several specific issues which impact women in the UK. Women generally live longer than men but spend a significantly greater proportion of their lives in ill health +/or disability when compared with men. Little focus is placed on women-specific issues like miscarriage and menopause and women are under-represented in clinical trials. Men were often used as the default choice in research and clinic trials, this has led to gaps in insight and data. Healthwatch Bury have engaged with local women to find out more about their experiences of health and care services during their adolescent, reproductive and post reproductive years in order to understand and improve local services.

Women's Health Project Report

Healthwatch Bury

May 2024

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Annual Report 2023/24

Healthwatch Waltham Forest

Healthwatch Waltham Forest, Annual Report 2023/24

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North East London Integrated Care System Research Engagement Network - Infographic

NHS North East London - National Institute for Health and Care Research NIHR

April 2024

NHS North East London - National Institute for Health and Care Research NIHR, North East London Integrated Care System Research Engagement Network, Infographic, April 2024

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Enter and View Visits, Observing local mental health wards

Healthwatch Bristol - Healthwatch North Somerset - Healthwatch South Gloucestershire

November 2023- June 2024

Healthwatch Bristol - Healthwatch North Somerset - Healthwatch South Gloucestershire, Enter and View Visits, Observing local mental health wards, November 2023 - June 2024

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	* Quality of care that people experience
	* Quality improvement
	* Public engagement
	* Wider policy and practice

Featured Reports
	RAND Corporation, Co-Design of Services for Health and Reentry (CO-SHARE), Research Report, 2019
	Healthwatch Bristol, Impact Report, The Natural Health Service, Bristol Community Pot Micro Projects, December 2018
	The Health Foundation, A place to grow, Exploring the future health of young people in five sites across the UK, December 2018
	Patient Experience Library, Patient Experience and patient/public involvement in health and care services, Quarterly update from The Patient Experience Library, Winter 2019
	Isle of Wight NHS Trust, ANNUAL PATIENT EXPERIENCE REPORT 2017 / 2018, 30th May 2018
	The Queen's Nursing Institute, Nursing care for people experiencing homelessness, a survey of the QNI Homeless Health Network, 2018
	Lancashire Teaching Hospitals NHS Trust, Patient Experience and Involvement Strategy, 2018 - 2021
	Healthwatch Gloucestershire, End of life report, Evaluation of non-clinical support, November 2018
	Healthcare Safety Investigation Branch, Investigation into the provision of mental health care to patients presenting at the emergency department, November 2018
	Healthwatch North Tyneside, Supporting People in Crisis, People's experiences of using services in North Tyneside when experiencing a mental health crisis, November 2018
	Healthwatch Cornwall, End of Life Care in Cornwall, A report on public understanding and experience, November 2018
	Royal College of Physicians, Outpatients, the future - adding value through sustainability, Case Studies, 2018
	Royal College of Physicians, Outpatients, the future - adding value through sustainability, 2018
	NHS England, Seeking Feedback in Distressing or Highly Emotional Situations, Bite-size guide to Patient Insight, October 2018
	Healthwatch York - York LGBT Forum, Lesbian, Gay, Bisexual and Trans+ (LGBT+) experiences of Health and Social Care services in York, September 2018
	Healthwatch Enfield, Informing the future direction of North Middlesex University Hospital NHS Trust, 2018
	Healthwatch Norfolk, Becoming a dementia friendly GP surgery, 5 simple steps, July 2018
	Age UK, The failing safety net, September 2018
	Healthwatch Hampshire, Enter and View Report, Willow House Residential Care Home, 2 Reading Rd, Farnborough GU14 6NA, 2nd May 2018
	Healthwatch Oxfordshire, Treatment only when needed, Dental Services for Care Home Residents, August 2018
	Healthwatch Wirral - Interchange, Health Without A Home, 2017/2018
	NHS Digital, Patient-Led Assessments of the Care Environment (PLACE), 21st March 2018 to 4th June 2018
	Healthcare Inspectorate Wales, Patient discharge from hospital to general practice, thematic report 2017-2018, published 2018
	Healthwatch Greenwich, Preliminary Review of Greenwich Child and Adolescent Mental Health Services, Identifying areas for further investigation, June 2018
	All Party Pharmacy Group, In Good Health, A Report following the All Party Pharmacy Group's 2018 Inquiry into Long Term Conditions, 11th July 2018
	Healthwatch Hampshire, Enter and View Report, Heatherside Care Home, Scures Hill, Basingstoke, Nately Scures RG27 9JR, 18th April 2018
	General Medical Council (GMC), National training surveys 2018, Initial findings report, 6th July 2018
	Carers UK, State of Caring 2018, July 2018
	MS Society - Nuffield Trust, Improving care for people with MS, the potential of data and technology, July 2018
	Healthwatch Hampshire, Enter and View Report, Bickerley Green Care Home, Kingsbury Lane, Ringwood BH24 1EL, 14th March 2018
	Health Expectations, Pre-adolescent children's experiences of receiving diabetes-related support from friends and peers, A qualitative study, Original Research Paper, 13th May 2018
	Patient and Client Council (Northern Ireland), The experience of living in a nursing home, Literature review and summary of key issues raised with the Patient and Client Council Complaints Service, June 2018
	Department of Health and Social Care, Carers Action Plan 2018 - 2020, Supporting carers today, June 2018
	Alex C Cheng, 1Vanderbilt University, Nashville, TN, Determining Burden of Commuting for Treatment Using Online Mapping Services - A Study of Breast Cancer Patients, 2017
	Healthwatch Derbyshire, Dementia Report Experiences of Health and Social Care services in Derbyshire from the perspectives of people living with dementia, their carers and family members, March 2018
	Healthwatch Kirklees, Asylum Seekers, Refugees and People from Emerging Communities, Health issues, inequalities and barriers in Kirklees, November 2017
	Healthwatch Hampshire, Enter and View Report, Hawthorne Court Nursing Home, Sarisbury Green, Southampton SO31 7LX, 21st February 2018
	Healthwatch Hampshire, Enter and View Report, Tegfield House Care Home, Chilbolton Avenue, Winchester SO22 5HD, 8th March 2018
	Healthwatch Surrey, 'What I want...within reason', An exploration of mealtimes in 20 care homes for older people., May 2018
	Healthwatch Lancashire, Supporting access to services for Military Veterans, May 2018
	NHS England, Fifteen Steps for Maternity, Quality from the Perspective of People who use Maternity Services, 2018
	Healthwatch Stockton-on-Tees, Report on patient experience of dental services in Stockton-on-Tees, February 2018
	Healthwatch Cheshire West - Healthwatch Cheshire East, Awareness of 'Self Care' in Cheshire, March 2018
	Healthwatch Cheshire West - Healthwatch Cheshire East, Access to Health and Care for the Boating Community in Cheshire, March 2018
	Healthwatch Shropshire, Enter and View Report, Albrighton Medical Practice, Shaw Lane Albrighton, Shropshire WV7 3DT, 19th April 2018
	Healthwatch Oldham, Type 2 Diabetes Forums Analysis Report, May 2018
	Healthwatch Richmond upon Thames, Richmond Early Intervention Service, Project Report, January 2018
	Healthwatch Lewisham, Food for Thought Lewisham, Children and Young People's Healthy Eating - Lewisham, 2017/2018
	Healthwatch Barnet, Home Care in Barnet, A report on the experiences of local home carers and home care agencies, April 2018
	Healthwatch Hackney and City - Hackney Mind, Single homelessness and mental health in Hackney - An insight into the experiences of single homeless people with mental health needs, April 2018
	Healthwatch Shropshire - Keele University, An analysis of the awareness and attitudes towards the complaints procedures in local general practices in Shrewsbury, from the perception of patients and staff members, March 2018
	Healthwatch Enfield, Accident & Emergency, a place of choice for addressing everyday healthcare needs, 2018
	Care Opinion, The Impact of Non-Clinical Staff Members on Patient Experience, An analysis of stories from Care Opinion, April 2018
	Healthwatch Trafford, Getting to the root of the problem, Experiences and availability of NHS Dentists in Trafford August - September 2017, Published March 2018
	Healthwatch Enfield, Accident & Emergency - a 'one stop shop' for everyday healthcare needs, North Middlesex University Hospital NHS Trust, 2018
	Care Quality Commission, Driving improvement, Driving improvement Case studies from seven mental health trusts, March 2018
	Care Quality Commission, Mental health rehabilitation inpatient services, Ward types, bed numbers and use by clinical commissioning groups and NHS trusts, March 2018
	Care Quality Commission, Monitoring the Mental Health Act in 2016/17, FULL REPORT, 1st March 2018
	Healthwatch York, Filled to Capacity, NHS Dentistry in York, March 2018
	Patient and Client Council, Our lived experience of waiting for healthcare, People in Northern Ireland share their story, March 2018
	Healthwatch West Berkshire, Homeless And Rough Sleepers Report, Access to and the Experience of Health and Social Care Services for Rough Sleepers in West Berkshire, 2018
	King's College London, Mapping of specialist primary health care services in England for people who are homeless, FULL REPORT, February 2018
	Department of Health and Social Care, Government response to the Lords Select Committee report on long-term sustainability of the NHS and adult social care, February 2018
	The Commonwealth Fund, Intensive outpatient care program, a care model for the medically complex piloted by employers, September 2017
	Macmillan Cancer Care, The final injustice, variation in end of life care in England, December 2017
	Healthwatch Hampshire, Enter and View Report, Pax Hill Care Home, Pax Hill, Bentley, Farnham, Surrey GU10 5NG, 19th October 2017
	The King's Fund, The risks to care quality and staff wellbeing of an NHS system under pressure, 31st January 2018
	The Inquiry into Hyponatraemia-related Deaths, Report of the Inquiry into Hyponatraemia-related Deaths, January 2018
	Care Quality Commission, 2017 survey of women's experiences of maternity care, January 2018
	Canadian Partnership Against Cancer, Living with Cancer - FULL REPORT, A Report on the Patient Experience, January 2018
	The King's Fund, Reimagining community services, Making the most of our assets, January 2018
	Innovation Unit, Against the odds, successfully scaling innovation in the NHS, 2008
	House of Commons Health Select Committee, The nursing workforce, 26th January 2018
	Patient Experience Library, Patient Experience and patient/public involvement in health and care services, Winter 2018
	Care Quality Commission, NHS Patient Survey Programme, 2016 Children and young people's inpatient and day case survey, November 2017
	NHS England, Patient and public voice partners and chairs survey report, November 2016
	The King's Fund, A tale of two cities, Community perspectives and narratives on inequality, struggle, hope and change, 2017
	Nuffield Trust, A two-way street, What can CCGs teach us about accountability in STPs?, November 2017
	The King's Fund, Embedding a culture of quality improvement, November 2017
	Healthwatch Leicester, Evaluating Young People's Experiences Of Transitioning In Local Health Services in Leicester, 2017
	Healthwatch East Riding of Yorkshire, Silent Partners, Working Age Male Mental Health, October 2017
	British Red Cross, Prevention in action, How are prevention and integration being implemented?, September 2017
	National Audit Office, Care Quality Commission - regulating health and social care, Full Report, October 2017
	Healthwatch Staffordshire, Hospital Discharge Report, July 2017
	Care Quality Commission, The state of hospice services in England 2014 to 2017, Findings from CQC's initial programme of comprehensive inspections of hospice services, Published October 2017
	Patient Experience Library, Patient Experience, Quarterly update from The Patient Experience Library, Autumn 2017
	Education Policy Institute, Access and Waiting Times in Children and Young People's Mental Health Services, September 2017
	Care Quality Commission, The state of care in general practice 2014 to 2017, Findings from CQC's programme of comprehensive inspections of GP practices, September 2017
	The King's Fund - Nuffield Trust, Sustainability and transformation plans in London, An independent analysis of the October 2016 STPs - (completed in March 2017, Publishd September 2017
	Macmillan Cancer Support, From the frontline, workforce pressures in the NHS, September 2017
	Institute of Public Care (IPC), Reducing health inequalities, system, scale and sustainability, July 2017
	Insitute for Fiscal Studies, Divided by choice? Private providers, patient choice and hospital sorting in the English National Health Service, 9th August 2017
	The King's Fund, Developing accountable care systems, Lessons from Canterbury, New Zealand FULL REPORT, August 2017
	Nuffield Trust, Primary Care Home, Evaluating a new model of primary care, August 2017
	Healthwatch Greenwich, Greenwich GP Access Report 2017, Published August 2017
	Healthwatch Essex, The Health Care Experiences of Homeless People in Essex, 2017
	Healthwatch Hounslow, Survey of London Ambulance Services (LAS) - Hounslow, 2017
	Care Quality Commission, The state of care in mental health services 2014 to 2017, Published July 2017
	Nuffield Trust, Learning from Scotland's NHS, Research report, July 2017
	Care Quality Commission, The state of adult social care services 2014 to 2017, Findings from CQC's initial programme of comprehensive inspections in adult social care, 6th July 2017
	Healthwatch Hampshire, Care at Home, Domiciliary care services from the patient's point of view, 2017
	Healthwatch Norfolk, General Practice in Norfolk, Working relationships with patients and other services (Part one), July, 2016
	Healthwatch Lancashire - Healthwatch Blackburn with Darwen - Healthwatch Blackpool, Screening and Immunisation in the Traveller Community, Report summarising feedback from the Traveller community in Lancashire in relation to NHS screening and immunisation services, June 2017
	The Royal College of Obstetricians and Gynaecologists, Each Baby Counts, 2015 Summary Report, Published June 2017
	World Health Organization (WHO), How to strengthen patient centredness in caring for people with multimorbidity in Europe?, 2016
	Patient Experience Library, Insight Report - Young People and Diabetes, Compiled for: Centre for Health Research, Brighton University, February 2017
	Frontiers in Sociology, Beware Zombies and Unicorns, Toward Critical Patient and Public Involvement in Health Research in a Neoliberal Context, 2nd June 2017
	Healthwatch Wokingham Borough, Creating a WIN-ing idea, Hub for Homeless, May 2017
	Care Quality Commission, 2016 Adult Inpatient Survey, Statistical release, May 2017
	NHS Clinical Commissioners, Supporting strategic commissioning, collaborative working between CCGs and AHSNs, May 2017
	The King's Fund - Royal College of Psychiatrists, Mental health and new models of care, Lessons from the vanguards, May 2017
	Journal of Healthcare Leadership, The imperative of culture, a quantitative analysis of the impact of culture on workforce engagement, patient experience, physician engagement, value-based purchasing, and turnover, 6th April 2017
	Alzheimer's Society, Turning Up the Volume, unheard voices of people with dementia, May 2017
	Mental Health Foundation, Surviving or Thriving? The state of the UK's mental health, 2017
	The King's Fund, Leading across the health and care system, Lessons from experience, May 2017
	NHS England, Involving people in their own health and care, Statutory guidance for clinical commissioning groups and NHS England, 2017
	Care Quality Commission, Celebrating Good Care, Championing Outstanding Care, April 2017
	The Health Foundation, Briefing, Provision of community care, who, what, how much?, April 2017
	NHS Clinical Commissioners, Excellence in commissioning diabetes care, April 2017
	House of Commons Committee of Public Accounts, Access to general practice, progress review, 27th April 2017
	House of Commons Committee of Public Accounts, Integrating health and social care, 27th April 2017
	The King's Fund, Caring to change, How compassionate leadership can stimulate innovation in health care, May 2017
	The King's Fund, Organising care at the NHS front line, Who is responsible?, May 2017
	QualityWatch, Focus on, Emergency hospital care for children and young people, What has changed in the past 10 years? FULL REPORT, April 2017
	Care Quality Commission, Review of CQC's impact on quality and improvement in health and social care, April 2017
	The King's Fund, The future of HIV services in England, Shaping the response to changing needs, April 2017
	Healthwatch West Berkshire, Moving on - the Final Transition, What happens when - a carer can no longer care?, April 2017
	Healthwatch Essex, Negotiating the Care Maze - In Poetry, The process of decision-making when a family member or friend needs full-time residential care, October 2016
	The King's Fund - Centre for the Analysis of Social Media (CASM) at Demos, Online Support, Investigating the role of public online forums in mental health, April 2017
	Healthwatch Dorset, I'm Still Me, A look at how care homes in Dorset support people to live active, independent lives - FULL REPORT, March 2017
	The King's Fund, Public satisfaction with the NHS and social care in 2016, Results and trends from the British Social Attitudes survey, March 2017
	Patient Experience Library, Insight Report - Maternity Services, Compiled for: Bolton NHS Foundation Trust, February 2017
	Centre for Health Economics - The University of York, The Effect of Hospital Ownership on Quality of Care, Evidence from England, March 2017
	Local Government Information Unit (LGIU), Paying for it, The human cost of cut-price care, March 2017
	Healthwatch Slough, How Slough organisations can learn from feedback and complaints, March 2017
	Healthwatch Northamptonshire, Access to health and social care services for Northamptonshire's homeless and vulnerably housed population, The views of homeless people and professionals, March 2017
	The Neurological Alliance, Falling short, How has neurology patient experience changed since 2014?, March 2017
	Patient Experience Library, Insight Report - Perinatal Mental Health, Compiled for: East Surrey Clinical Commissioning Group, January 2017
	Healthwatch Leicestershire, The Lived Experience of Hospital Discharge, Survey of patients, carers and staff, February 2017
	Thomas Pocklington Trust, Older people's experiences of sight loss in care homes, FULL REPORT, February 2017
	NHS England, Five year forward view for mental health, one year on, February 2017
	Nuffield Trust, The London Quality Standards, A case study in changing clinical care - FULL REPORT, February 2017
	The Royal College of Midwives, State of Maternity Services Report 2016
	Healthwatch Kent, Discharge from Darent Valley Hospital, January 2017
	Healthwatch Hampshire, Out of focus, Certifications, registrations and signposting in pre and post diagnosis in Ophthalmology clinics within Hampshire: The role of Eye Clinic Liaison Officers, 2017
	Healthwatch Wiltshire, Listening to Children and Young People, Your Experience of Health and Social Care, December 2016
	Healthwatch East Riding of Yorkshire, Changing the Stigma, People's experience and perception of self-harm, February 2017
	Healthwatch Northamptonshire, Experiences of pregnancy, birth and onwards, The views of parents about services and support in Northamptonshire, January 2017
	Healthwatch Dorset - Healthwatch Hampshire - Healthwatch Isle of Wight - Healthwatch Southampton - Healthwatch Portsmouth (Wessex Voices) - NHS England Wessex., Positively engaging in NHS change, how best to involve people, Wessex Voices Event FULL Report, December 2016
	The Commonwealth Fund, Designing a High-Performing Health Care System for Patients with Complex Needs, Ten Recommendations for Policymakers, January 2017